Donor-Linking Provisions in New Zealand: Counselling Roles, Concerns and Needs.

Simple item page
aut.relation.issue1
aut.relation.journalHum Fertil (Camb)
aut.relation.startpage2343718
aut.relation.volume27
dc.contributor.authorGoedeke, Sonja
dc.contributor.authorGamble, Heather
dc.date.accessioned2024-05-01T23:56:56Z
dc.date.available2024-05-01T23:56:56Z
dc.date.issued2024-04-25
dc.description.abstractDonor-linking where those genetically related through donor conception (e.g. donor-conceived persons (DCP), donors and siblings), or recipient parents, search for and connect with each other, is increasingly common, both in identity-release jurisdictions where donors' identifying information may be released to DCP, usually when they become adults - and in anonymous jurisdictions, e.g. as a result of direct-to-consumer DNA testing. In this paper, we explore New Zealand fertility clinic counsellors' views regarding their donor-linking roles and their concerns and needs in relation to current and anticipated service provision. Counsellors believed that fertility service providers had a longer-term responsibility to offer donor-linking services to ensure the wellbeing of all parties affected by donor conception. They perceived their role as complex and multifaceted, encompassing psychoeducation, mediation, advocacy, facilitation, relationship counselling, and therapeutic intervention. They identified significant service provision challenges however, including inadequate staffing, training, time and prioritisation of donor-linking, and inadequate legislative provisions to support practice. Counsellors called for clarity in legislation addressing different contexts of donation and providing measures to ensure the recording of and access to identifying information. They expressed a need for comprehensive, funded donor-linking services, therefore facilitating choice, and services staffed by professionally trained and supported staff.
dc.identifier.citationHum Fertil (Camb), ISSN: 1464-7273 (Print); 1742-8149 (Online), Informa UK Limited, 27(1), 2343718-. doi: 10.1080/14647273.2024.2343718
dc.identifier.doi10.1080/14647273.2024.2343718
dc.identifier.issn1464-7273
dc.identifier.issn1742-8149
dc.identifier.urihttp://hdl.handle.net/10292/17499
dc.languageeng
dc.publisherInforma UK Limited
dc.relation.urihttps://www.tandfonline.com/doi/full/10.1080/14647273.2024.2343718
dc.rights© 2024 The Author(s). Published by Informa UK Limited, trading as Taylor & Francis Group. This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial License (http://creativecommons.org/licenses/by-nc/4.0/), which permits unrestricted non-commercial use, distribution, and reproduction in any medium, provided the original work is properly cited. The terms on which this article has been published allow the posting of the Accepted Manuscript in a repository by the author(s) or with their consent.
dc.rights.accessrightsOpenAccess
dc.rights.urihttp://creativecommons.org/licenses/by-nc/4.0/
dc.subjectDonor-linking
dc.subjectclinical practice
dc.subjectconcerns
dc.subjectcounselling
dc.subjectneeds
dc.subject3215 Reproductive Medicine
dc.subject32 Biomedical and Clinical Sciences
dc.subject7.1 Individual care needs
dc.subject7 Management of diseases and conditions
dc.subject1103 Clinical Sciences
dc.subject1114 Paediatrics and Reproductive Medicine
dc.subjectObstetrics & Reproductive Medicine
dc.subject3215 Reproductive medicine
dc.subject.meshHumans
dc.subject.meshNew Zealand
dc.subject.meshFemale
dc.subject.meshCounseling
dc.subject.meshTissue Donors
dc.subject.meshAdult
dc.subject.meshDonor Conception
dc.subject.meshMale
dc.subject.meshHumans
dc.subject.meshNew Zealand
dc.subject.meshFemale
dc.subject.meshCounseling
dc.subject.meshTissue Donors
dc.subject.meshAdult
dc.subject.meshDonor Conception
dc.subject.meshMale
dc.titleDonor-Linking Provisions in New Zealand: Counselling Roles, Concerns and Needs.
dc.typeJournal Article
pubs.elements-id546576
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