Living with Dementia in Aotearoa (LiDiA): A feasibility study for a dementia prevalence study in Māori and non-Māori Living in New Zealand

Simple item page
aut.relation.endpage14713012231173012
aut.relation.journalDementia (London)
aut.relation.startpage14713012231173012
dc.contributor.authorMartinez-Ruiz, Adrian
dc.contributor.authorYates, Susan
dc.contributor.authorCheung, Gary
dc.contributor.authorCullum, Sarah
dc.contributor.authorDudley, Makarena
dc.contributor.authorKrishnamurthi, Rita
dc.contributor.authorFa'alau, Fuafiva
dc.contributor.authorKerse, Ngaire
dc.contributor.authorRoberts, Mary
dc.contributor.authorTaufa, Seini
dc.contributor.authorRivera Rodriguez, Claudia
dc.date.accessioned2023-08-15T23:13:37Z
dc.date.available2023-08-15T23:13:37Z
dc.date.issued2023
dc.description.abstractINTRODUCTION: Recent estimations have projected a threefold increase in dementia prevalence in Aotearoa New Zealand (NZ) by 2050, particularly in Maori and Pacific peoples. However, to date, there are no national data on dementia prevalence, and overseas data are used to estimate the NZ dementia statistics. The aim of this feasibility study was to prepare the groundwork for the first full-scale NZ dementia prevalence study that is representative of Māori, European, Pacific and Asian peoples living in NZ. METHODS: The main feasibility issues were: (i) Sampling to ensure adequate community representation from the included ethnic groups, (ii) Preparing a workforce to conduct the fieldwork and developing quality control, (iii) Raising awareness of the study in the communities (iv) Maximizing recruitment by door-knocking, (v) Retaining those we have recruited to the study and (vi) Acceptability of study recruitment and assessment using adapted versions of the 10/66 dementia protocol in different ethnic groups living in South Auckland. RESULTS: We found that a probability sampling strategy using NZ Census data was reasonably accurate and all ethnic groups were sampled effectively. We demonstrated that we were able to train up a multi-ethnic workforce consisting of lay interviewers who were able to administer the 10/66 dementia protocol in community settings. The response rate (224/297, 75.5%) at the door-knocking stage was good but attrition at subsequent stages was high and only 75/297 (25.2%) received the full interview. CONCLUSIONS: Our study showed that it would be feasible to conduct a population-based dementia prevalence study using the 10/66 dementia protocol in Māori, European and Asian communities living in NZ, utilizing a qualified, skilled research team representative of the families participating in the study. The study has demonstrated that for recruitment and interviewing in Pacific communities a different but culturally appropriate approach is required.
dc.identifier.citationDementia (London), ISSN: 1741-2684 (Print); 1741-2684 (Online), SAGE Publications, 14713012231173012-14713012231173012. doi: 10.1177/14713012231173012
dc.identifier.doi10.1177/14713012231173012
dc.identifier.issn1741-2684
dc.identifier.issn1741-2684
dc.identifier.urihttp://hdl.handle.net/10292/16552
dc.languageeng
dc.publisherSAGE Publications
dc.relation.urihttps://journals.sagepub.com/doi/10.1177/14713012231173012
dc.rights.accessrightsOpenAccess
dc.rights.urihttps://creativecommons.org/licenses/by-nc/4.0/
dc.subjectdementia
dc.subjectdementia prevalence
dc.subjectfeasibility study
dc.subjectmulti-ethnic dementia prevalence
dc.subjectpopulation based study
dc.subjectdementia
dc.subjectdementia prevalence
dc.subjectfeasibility study
dc.subjectmulti-ethnic dementia prevalence
dc.subjectpopulation based study
dc.subject4203 Health Services and Systems
dc.subject42 Health Sciences
dc.subjectAcquired Cognitive Impairment
dc.subjectBrain Disorders
dc.subjectDementia
dc.subject1103 Clinical Sciences
dc.subject1110 Nursing
dc.subject1702 Cognitive Sciences
dc.subjectGeriatrics
dc.subject4203 Health services and systems
dc.subject4205 Nursing
dc.titleLiving with Dementia in Aotearoa (LiDiA): A feasibility study for a dementia prevalence study in Māori and non-Māori Living in New Zealand
dc.typeJournal Article
pubs.elements-id506363
Files
Original bundle
Now showing 1 - 2 of 2
Thumbnail Image
Name:
14713012231173012.pdf
Size:
747.11 KB
Format:
Adobe Portable Document Format
Description:
Journal article
Download
Thumbnail Image
Name:
Martinez-Ruiz et al._2024_Living with dementia.pdf
Size:
749.97 KB
Format:
Adobe Portable Document Format
Description:
Evidence for verification
Download
Collections
NISAN - the National Institute for Stroke and Applied Neurosciences