What Do Health Care Professionals Want To Know About Assisted Dying? Setting the Research Agenda in New Zealand

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aut.relation.articlenumber40
aut.relation.issue1
aut.relation.journalBMC Palliative Care
aut.relation.volume22
dc.contributor.authorYoung, Jessica
dc.contributor.authorSnelling, Jeanne
dc.contributor.authorBeaumont, Sophie
dc.contributor.authorDiesfeld, Kate
dc.contributor.authorWhite, Ben
dc.contributor.authorWillmott, Lindy
dc.contributor.authorRobinson, Jacqualine
dc.contributor.authorAhuriri-Driscoll, Annabel
dc.contributor.authorCheung, Gary
dc.contributor.authorDehkhoda, Aida
dc.contributor.authorEgan, Richard
dc.contributor.authorJap, James
dc.contributor.authorKaraka-Clarke, Te Hurinui
dc.contributor.authorManson, Leanne
dc.contributor.authorMcLaren, Cam
dc.contributor.authorWinters, Janine
dc.date.accessioned2023-05-15T23:17:52Z
dc.date.available2023-05-15T23:17:52Z
dc.date.issued2023-04-10
dc.description.abstractBackground New Zealand recently introduced law permitting terminally ill people to request and receive assisted dying (AD) in specified circumstances. Given the nature and complexity of this new health service, research is vital to determine how AD is operating in practice. Objective To identify research priorities regarding the implementation and delivery of AD in New Zealand. Methods Using an adapted research prioritisation methodology, the researchers identified 15 potential AD research topics. A mixed-methods survey of health professionals was undertaken where respondents were asked to rate the 15 topics according to the relative importance for research to be conducted on each issue. Respondents could also suggest additional research areas, and were invited to participate in a follow-up interview. Results One hundred and nineteen respondents completed the survey. 31% had some experience with AD. The highest rated research topic was the ‘effectiveness of safeguards in the Act to protect people’; the lowest rated topic was research into the ‘experiences of non-provider (e.g., administrative, cleaning) staff where assisted dying is being provided’. Respondents suggested 49 other research topics. Twenty-six interviews were conducted. Thematic analysis of interview data and open-ended survey questions was undertaken. Six research themes were identified: general factors related to the wider health system; the experiences of health care providers at the bedside; medico-legal issues; the impact of AD; experiences on the day of dying; and the overall effectiveness of the AD system. Key issues for stakeholders included safety of the AD service; ensuring access to AD; achieving equity for ‘structurally disadvantaged’ groups; and ensuring the well-being of patients, families/whānau, providers and non-providers. Conclusions Based on early experiences of the implementation of the AD service, health professionals provide important insights into what research should be prioritised post-legalisation of AD. These findings can be used to shape the research agenda so that research may inform law, policy and best practice.
dc.identifier.citationBMC Palliative Care, ISSN: 1472-684X (Online), Springer Science and Business Media LLC, 22(1). doi: 10.1186/s12904-023-01159-8
dc.identifier.doi10.1186/s12904-023-01159-8
dc.identifier.issn1472-684X
dc.identifier.urihttps://hdl.handle.net/10292/16139
dc.languageen
dc.publisherSpringer Science and Business Media LLC
dc.relation.urihttps://bmcpalliatcare.biomedcentral.com/articles/10.1186/s12904-023-01159-8
dc.rights.accessrightsOpenAccess
dc.rights.urihttp://creativecommons.org/licenses/by/4.0/
dc.subject1110 Nursing
dc.subject1117 Public Health and Health Services
dc.subjectGerontology
dc.subject4203 Health services and systems
dc.subject4205 Nursing
dc.titleWhat Do Health Care Professionals Want To Know About Assisted Dying? Setting the Research Agenda in New Zealand
dc.typeJournal Article
pubs.elements-id499080
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